When The Rug of Life is Ripped Out from Under You

67

By delaneyworld

Source: Jen Privitera

We all walk the line between who we think we are and who we really are every day. Sometimes that line becomes fuzzier and sometimes more clear. There are not a lot of people who get the opportunity to step over that line and see themselves clearly, even for a minute. I got that chance the other day when I stepped into the Department of Economic Security. I was not there because I wanted to be, I was there because I had to be.

I was raised in an upper middle class family. My dad is and always will be ultra-conservative. He was Republican, so when I turned 18 I signed up as one too. I graduated from high school, obtained my Bachelor’s Degree, got married, had a beautiful baby girl, and then completed my Master’s Degree. I have worked full time, part time, worked from home and worked as a mom. I have been under-qualified, over-qualified and totally terrified. I have been a Type A personality and a Type B; neither label ever made a difference. My life in a nutshell.

I am your mother, sister, niece, daughter, aunt, neighbor and friend.

I was brought to my knees 5 years ago with the diagnosis of Rheumatoid Arthritis. I was in my 30s and had no idea what was to come. I thought I could not fall further than my knees until I was diagnosed with 20 additional diagnoses and a pending divorce. That knocked me right on my butt. I now have to lay down twice a day in order to gather enough energy to get back up again and do the things I need to do. Millions of people out there, maybe you or someone you love, faces a similar struggle.

I am unable to work, have no health insurance, my daughter has a chronic illness also and we are living with my mom. I am now almost 40 years old. My mom cannot afford to support us on her income, nor should she have to. My one day to be ex-husband is doing his best to help us out while trying to support himself separately as well.

All inner demon and self esteem issues aside, my daughter and I are barely scraping by. My mother’s Golden Years are now more of an Avocado or Burnt Umber.

The DES office was a big room filled with small plastic chairs, filled with people. It was hot and the walls were dirty. I kept wondering, "Why don't they pain the walls a darker color?" It would camouflage the dirt on the walls. I don't understand why the walls were so dirty.

This was one DES office in the State of Arizona. Just one. There were so many people there waiting for help. How many millions of people are sitting in DES office across the country, asking for help, in this, the richest country in the world?

The stories are different but basically the same: Chronic pain, job loss, abandonment and illness. There are so many of us who are lost; so many who just cannot make it.

I am willing to be that not one person wanted to be there, but they had to. They had no choice. They - no, we, all have children, spouses, parents in need. The room was filled with people of all shapes, colors, genders and sizes. We were all the same. We needed help. I sat there with my Master’s Degree, my waiting room buddies sat there with their Associate’s Degrees, Bachelor’s Degrees, their life experience, their retirement, their PhDs, and their infants.

There were not many smiles there, but there were some. The employees looked tired, but they kept calling names, calling people into he back office to try to help. They were wearing Hawaiian clothing for an office celebration, so their clothing was bright. Their faces were not. They had cake and one employee told me that they never finish a cake when it's brought in. I thought that was weird. Usually offices are full of human locusts who descend and devour anything edible. Not here though. They just weren't hungry.

I waited for about 2.5 hours until my name was called. I have waited longer for a doctor. I followed my representative into her cubicle. Her desk faced the back of her space. A chair sat jt behind her in which I sat. She faced her monitor the entire time and not once looked me in the eye. She was polite, but I wonder if her work area was set up that way to avoid prolonged conversation or it's just too painful to see people struggling every day?

I neglected to bring the paperwork she needed to complete my interview. She asked me why. I felt like a boob answering, “I’m sorry. I guess I didn’t read the instructions well enough.” She explained the importance of following directions as I held my hands in my lap and swung my saddle shoes back and forth. My real answer, the one I could not say aloud was, “I am desperate and scared. I don’t know what I am doing. I can’t remember to wash my hair much less find documentation I no doubt put somewhere safe where I may never find it.”

Why are so many of us struggling? I am online a lot, I watch the news, I see and hear many fellow Americans talk about how the “lazy and useless” people are sucking the life out of our economy. I don’t know all of the facts and figures. They are just numbers to me. Before my life changed I was Republican. Now what am I? I am one girl out of millions who has lost many of life’s battles.

I refuse to label myself any longer. I looked around that large, unflatteringly lit room and saw myself in every person there: man, woman, black, white, brown, limping, able-bodied, young, old, client and employee. I was helped just as surely as the woman sitting next to me and the man sitting next to her. The employees did not leave that office until every person has been seen.

We all stood on equal ground then and there. We all needed help to live. Not one person wanted to be there. Every person had to be there.

If you have read this far your question may be, “What is your point, woman?”

At one time I was a healthy, intelligent, motivated woman with hopes, goals and dreams. I am no longer healthy, but I remain an intelligent, compassionate, motivated woman with hopes, goals and dreams. They have changed drastically simple due to fate’s role of the dice and unexpected circumstances.

No one is safe. No one is immune. No amount of energy, education or preparation can protect you when you are slapped upside the head with tragedy or unexpected event.

The world would be a better place if all humans would open their eyes and recognize that we are all the same. We are all vulnerable. Our battles could be more effectively fought if we all would withhold judgment and realize that every one of us is one unfortunate circumstance away from DES, one circumstance from hoping and praying we can get the help when we need it.

Just because so many of us are losing battles each day doesn’t mean that with the understanding and compassion of others, we cannot win the war.

It is not a war of monetary or professional success, but the war of ultimate survival, basic security and the knowledge deep in your heart that every single one of us counts. We all deserve compassion and we all should give it freely, without restraint.

Any one of us may be walking into DES tomorrow. I gave my cool bottle of water to a woman waiting in line with me – not because I had to, but because I wanted to. I learned something about myself the other day. My view of myself became suddenly clear when I realize I could not save anyone in that room with me. Heck, I cannot even save myself.

What I did learn is that compassion is not the answer to all of the world’s problems; but it is a damn good start.


Comments

samsons1 profile image

samsons1 Level 5 Commenter 10 months ago

Very good hub and well written. Keep up the good work...

jacqui2011 profile image

jacqui2011 Level 6 Commenter 10 months ago

I love your writing style. You are such a talented writer. I wish you and your family well in the future.

Jennuhlee profile image

Jennuhlee Level 1 Commenter 10 months ago

This was a very personal, raw piece of work, I'm glad you shared it. I'm sure it wasn't easy, what a painful story, but I'm glad you still manage to have a good outlook. I have a mother on food stamps with more kids than she can feed and a father who has always been on more of a right track. I've lived my whole life on both sides, currently my father is laid off and my step mother being cut to part time due to senate bill 5 and my mother is making more from the government than most people with college degrees. It's a messed up world. You're right no one is immune. Nothing is fair.greathub

delaneyworld profile image

delaneyworld Hub Author 10 months ago

Thank you so much for reading this. I appreciate it so much. Sending positive thoughts to you all.

JamaGenee profile image

JamaGenee Level 8 Commenter 9 months ago

Members of Congress who think they're doing the country a favor by cutting (or eliminating altogether) funding for programs that are the last resort for a good portion of the population should be required to spend a week in the waiting rooms of DES offices and see that the people there are NOT the stereotypical deadbeat or "loser", only people who have been felled by circumstances not of their making or choosing.

Thank you for sharing this part of your life, and may you find all the paperwork necessary to obtain the help you and your daughter so desperately need. ;D

delaneyworld profile image

delaneyworld Hub Author 9 months ago

Thank you again JamaGenee. I know there must be some solutions out there that have yet to be found. I am feeling very positive that this too shall pass. It seems that it usually works that way in life. Thanks for your visit! :)

vmsacting 9 months ago

You have ALWAYS amazed me. I hope writing this is helping you work through what you need. I pray for you and your health, my dear friend

delaneyworld profile image

delaneyworld Hub Author 9 months ago

Thank you so much vmsacting, my friend. Thank you for reading my work and thank you for being my friend. You are pretty wonderful yourself!!

butterflyblessing profile image

butterflyblessing 9 months ago

Bless your heart...you are truly inspirational to say the least. As someone who has experienced many of the same situations that you are facing in your life right now; it takes someone who is very strong to face the type of adversity you are up against. I am 35 years old and have been diagnosed with Lupus and Rhuematoid Arthrits for the past ten years; along with a extensive list of other problems that come along with them. Along the way I lost my ability to work and support myself, my husband walked off and left me because he could never handle my illness, I ended up on disability after fighting the system for three years, and I have to depend on my parents to help me because as you know Social Security doesn't pay enough to survive. It's horrible enough when you cannot control what is going on inside of your body, much less what is going on around you...it's frustrating to say the least. But you are really amazing and it was so uplifting and refreshing to read your article; even during this crisis in your life you showed so much compassion to others and you brought to light the struggles of so many who do not have a voice out there. It definately hit close to home and I just want to say thank you so much...I will be praying for you and your daughter; keep your faith strong and believe in yourself. Hugs!:)

delaneyworld profile image

delaneyworld Hub Author 9 months ago

Thank you so much, ButterflyBlessing. Your words are lovely and I appreciate you reading my piece. I am sorry you are experiencing similar struggles with health and marriage, etc. I feel blessed to have my parents in my life, just as you do. I know there are so many people out there without any support. Thank you for writing and I'm sending prayers right back out there for you too. Sending hugs as well!

Darknlovely3436 profile image

Darknlovely3436 Level 5 Commenter 9 months ago

profound interesting hub

delaneyworld profile image

delaneyworld Hub Author 9 months ago

Thank you Darknlovely3436. I appreciate it greatly.

Skye 9 months ago

Jen- This was great you are always so personable with your writing. I have always enjoyed that about you (Jen and I have worked together many years ago). You are so talented things will get better, they have to.

delaneyworld profile image

delaneyworld Hub Author 9 months ago

Thank you sweet Skye. You are so sweet and thank you so much. I hope you are doing well. Sending much love and I appreciate your reading my piece. :)

Donna Laubli 6 months ago

Jen, beautifully written and unfortunately so hard to write about something so personal that so many can relate to. Your story brings humanity into the situation so many find ourselves in globally, but the extra burden of heath for you and your family makes me want to cry for you all, for someone so beautiful going through such horrid times cannot be fair. I know you’re a wonderful and determined sole, with a huge heart. I know you will find reason for everything that is happening to you and your family right now and that will come to light in the future. Maybe it’s to share the message of hope and resilience, maybe when times are really bad, the good times feel more than wonderful. My heart and prayers go to you and your beautiful family at this time and know that so many people send their love. Hugs Donna

delaneyworld profile image

delaneyworld Hub Author 6 months ago

Thank you so much Donna. I appreciate you reading my article and your kind words. It really does make me appreciate every good day that passes and I certainly appreciate my girls. I am blessed to you know and thank you so much.

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